Trials are Friends

Davis had a regularly scheduled quarterly appointment today

Good news is he didn't have to have a blood draw
because for now we are no longer monitoring his keppra levels

Bad news is I'm still frustrated

I'm frustrated that there is no logical explanation
Therefore making it difficult to decipher the best plan
So we try things
And we observe
Then question
How to proceed

So today we discussed the behavior and sensory challenges
We are going to try to reduce his anti-seizure dosage
And wait and see for 2 weeks
Then re-evaluate whether to reduce again

No one knows which is worse
The behavior/character challenges?
Or increased seizure frequency/severity?

And while we're waiting we all seek discernment and clarity

Last month
I overheard a morning conversation between Avery & Carver
they were discussing
Davis
and seizures
...
Avery was working on a school assignment
he had to identify a sticky situation
and define 3 different decision paths
he chose Davis' seizures
path 1 was do nothing, no questions, no meds, nothing
path 2 was what we've been doing
he and Carver were struggling to come up with path 3
which enabled a wonderful breakfast conversation
about exactly where we are
and what we are struggling with
as we walk path 3 step by step

A week later Avery got a sticker for that assignment
for tackling a real sticky situation
many other students went with hypotheticals

PS if you are looking for a great family devotional
we highly recommend
Keys for Kids
it's a tradition that began when i was a kid
that we are passing on to the next generation
it is snail mailed to us every other month
I or Lance read the daily story
and the kids guess the key at the end
the stories are so relevant!
November 1 key was: Trials are Friends
http://www.cbhministries.org/ForKids/KeysforKids/ReadListen.aspx?ID=8408

tonight is Wednesday
tomorrow morning i get some 1-1 time with Aery
as I drive him to 7:30a prayer at church
how cool that he chooses to get ready early
every Thursday
to CONNECT for prayer
with his peers making the same choice
at 7:30a
every Thursday

on the way we talk about items for prayer
and we listen to the radio
the last several weeks
the
exact
same
3 songs
have been on the radio
every week
I Can Only Imagine by Mercy Me
Lose My Soul by TobyMac
We Live by Superchick

and i am gifted with the opportunity
to sing out loud with him
in the van
and talk about the lyrics
"Will I stand in your presence or to my knees will I fall
Will I sing hallelujah, will I be able to speak at all
I can only imagine"
...
"I don't want to gain the whole world, and lose my soul"
...
"We live, we love, we forgive and never give up
Cuz the days we are given are gifts from above
And today we remember to live and to love"

-tvz

"Today…Let there be peace within me,

trusting that God has planted me

right where I am meant to be."